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Medical gaslighting meets mom rage in the absurd quest to save a child from invisible illness

Let me paint you a picture of modern medical absurdity. Imagine your fourth grader. Yesterday she was making friendship bracelets and quoting Encanto. Today shes trying to leap from moving vehicles while screaming about invisible enemies. You rush her to hospitals clutching her favorite stuffed animal like a holy relic, only to have eleven different physicians glance at her pupils blown wide as saucers and declare, Have you considered its probably... puberty?

This is not hypothetical. Its the actual lived nightmare of Crystal Loos, a mother who learned that when a previously healthy child abruptly develops the emotional volatility of a caffeinated honey badger, the healthcare response often involves antidepressants, side eye, and an unspoken accusation that maybe you just parented wrong.

Loos daughter Lacy Mae didnt decline slowly. She detonated. One minute the girl was a typical nine year old, the next she was refusing food, missing school, and experiencing paranoia so intense she begged adult style, fetal position on the floor begged to be admitted to a psych ward. Rages left her family physically restraining her to prevent self harm. Her five year old brother hid in terror. Newborn sibling notwithstanding, this wasnt sibling rivalry. This was The Exorcist without the cool head spin.

Now heres where the dark comedy kicks in. When Loos breathlessly suggested PANS Pediatric Acute onset Neuropsychiatric Syndrome to doctors, youd think she proposed treating the kid with essential oils and interpretive dance. PANS? That thing where strep throat or other infections trigger sudden psychiatric mayhem? The one where antibodies apparently mistake a childs brain for a pathogen pinata? Surely not! Much simpler to prescribe SSRIs to a prepubescent experiencing psychosis and move briskly along.

The punchline PANS is controversial precisely because its both biological and dramatic. Kids dont gradually become anxious. They wake up different. This terrifies everyone playing medical hot potato with their care. Psychiatrists say its immunological. Immunologists say its psychiatric. The ER docs Google it while you cry in the family lounge. Its like having a smoke alarm blaring while firefighters debate whether the smell of burning toast constitutes an actual emergency.

Let us pause to admire the tragicomedy of modern medicine when confronted with messy illnesses. Show up with a compound fracture, theyll fix you in under an hour. Present with a child whose brain chemistry just did the Macarena without consent? Good luck. Youll get seven referrals and a bill that makes you laugh like a supervillain. Watching a parent desperately research medical journals while specialists dismiss them as hysterical feels like watching someone try to bail out the Titanic with a teacup.

Meanwhile Lacy Mae essentially missed fourth grade. Let that sink in. We live in an era where hospitals can 3D print organs but a child must sacrifice a year of math prep and recess because autoimmune encephalitis isn't trendy enough for research funding. The Loos family was fragmented newborn with mom, traumatized brother elsewhere, rage monster preteen exiled to grandparents house. All while doctors nodded sympathetically and suggested maybe try a food diary.

Heres the infuriating twist in this dark comedy when Loos finally found a doctor willing to treat the PANS possibility, Loos daughter improved. Slowly, messily, but demonstrably. The relief was no doubt accompanied by the urge to mail every dismissive specialist a glitter bomb card reading Told You So From the Mom You Ignored.

The lesson lurking beneath this horror comedy parenting manual is simple Never stop being a pain in medicines ass when your kid is suffering. If the system insists your terrified child is merely anxious after theyve tried to jump from a moving car, channel your inner Karen. Demand the labs. Cite the studies. Bring backup. Modern healthcare often operates like an exclusive club where symptoms require membership cards these kids don't have.

We must laugh at the absurdity because the alternative is screaming. Between maternal instincts and medical gaslighting lies a chasm wide enough to swallow families whole. If a child can overnight become unrecognizable, surely the system can do better than shrugging and suggesting more yoga. Until then, parents like Loos are left performing stand up routines in hospital hallways, jokes tinged with desperation, praying someone finally gets the punchline before its too late.

Disclaimer: This article is for informational and commentary purposes only and reflects the author’s personal views. It is not intended to provide medical advice, diagnosis, or treatment. No statements should be considered factual unless explicitly sourced. Always consult a qualified health professional before making health related decisions.

George ThompsonBy George Thompson